Treating muscular dystrophy

By Nord Niger Santé

Our aim is to offer medical, educational and social assistance to children with muscular dystrophy in Niger. This country of 15 million inhabitants, which is the poorest in the world, does not provide medical care for people with such a medical condition

At first

In 2007, we met Amar Boka’s family in Niger, with 5 out of 6 children suffering from muscular dystrophy. A specific diagnosis was then conducted in France. In 2009 the NGO ASEM Niger was founded.

Today

A medical centre was built in Niamey in 2010. The NGO has now bought a van for the transportation of handicapped patients and has trained biologists on site.

Tomorrow

Reinforce the capacity of the centre to make it a key structure in Niger for the treatment of muscular dystrophy, bringing together French and African experts.

Our team

  • Serge Boutin

    Serge Boutin

    Serge is a general practitioner and the president and founder of the NGO Nord Niger Santé. He has been working in collaboration with Niger and the Sahel region for 10 years.

  • France Leturcq

    France Leturcq

    France is a molecular geneticist at the Cochin Hospital in Paris. She has extensive experience in diagnosing and treating patients with muscular dystrophy throughout the world. She has been to Niamey twice to treat children with this illness and to train biologists in ADN extraction.

  • Amar Boka

    Amar Boka

    Amar is the president of the NGO Association Solidarité Enfants Myopathes Niger (ASEM Niger). He is the father of 5 children suffering from muscular dystrophy.

Total: 11 520€ raised

  • 75€/month Cover medical costs
  • 75€/month Cover laboratory costs for tests
  • 80€/month Maintain the medical centre and van
  • 50€/month Offer physiotherapy treatment
  • 50€/month Hire a coordinator for the medical centre
Support this project

Social links

This project is also available in: French

Go back to the project list